
The Creutzfeldt-Jakob Disease (CJD) Support Network (CJDSN) was set up in 1995 and became a registered charity in England and Wales in 2003 (charity no. 1097173). The CJDSN is staffed and governed by individuals with a personal or professional connection to CJD and prion diseases.
CJD is one of a group of rare diseases called prion diseases. These are progressive and invariably fatal neurodegenerative diseases affecting 1-2 people per million of the population per year. The CJDSN exists for the benefit of all those who have a connection to CJD and prion diseases.